Advocacy: “My advocacy officer was just incredible"

Our Advocacy service is here to help you get the care, support, services, benefits and equipment you are entitled to. We can advise you, or if it is suitable, intervene on your behalf.

Kerry Brett, 56, from Porthcawl, has Facioscapulohumeral muscular dystrophy, which affects between 2,000 and 2,500 people in the UK. He contacted our Advocacy services after having his application for Employment Support Allowance (ESA) refused in April 2017.

He said:


“My advocacy officer was just incredible. She wrote letters, helped to gather extra evidence for my case, and supported me throughout the entire process.


“Because there were so many delays, it went on for 17 months, but she helped me through all of it and eventually my case went to appeal. It was nerve-wracking, but she came with me for emotional support. I think it meant as much to her as it did to me when my appeal was granted and they backdated the payments.


“I was lucky to have found out about Muscular Dystrophy UK. After my original application, I went on to the website and saw they offered advocacy support. I would 100% recommend this service – without it I still wouldn’t be getting ESA. I just want other people to know about it so they can help them as much as they’ve helped me.”


You can find our Advocacy team in two ways. Part of the team are based in our headquarters and you can contact them via our Helpline. We also have six new officers working in clinics all over the country, providing the same support where people need it most.

Find out more about the services we offer.