URGENT APPEAL: Help us continue to provide our services


Always stronger, together

So far, 2021 isn’t looking too different from the year we’ve left behind. We’re facing a second wave of the pandemic and a third lockdown, along with the reality that we’ll have to live, work and interact in this virtual world for some time.

One difference 2021 has brought with it, though, is hope. It comes in the form of a UK-wide vaccine programme, and coronavirus treatments that weren’t available a year ago. We want to add to that the hope of new treatments for muscle-wasting conditions, by once again funding new research. And for that, we’re relying on your support.

Last year, your extraordinary support kept us going as we faced a £2.8m funding gap. We had to act quickly and adjust the way we worked, which meant making difficult decisions to reduce the size of our team and cancel our research grant round. We even moved two of our programmes to new charities. We continued to deliver our essential services with a smaller team and from home, and your support helped us to keep people with muscle-wasting conditions at the heart of everything we do.

Our helpline team, dealing with a 40 percent increase in demand for its services, were able to continue offering support and practical advice. You also helped us keep our coronavirus and shielding guidance accurate and current, keep our community connected through virtual events and sustain our existing research grants.

We’ve learnt a lot. We’ve innovated, found creative solutions to speed up processes and deliver services, built partnerships and programmes that supported our clinicians and partner charities, and tested new fundraising ideas as live products. We’ve found new, more inclusive ways of working that we’ll continue, as they serve our community better. As an example, we had 1,487 sign ups to our Muscles Matter seminar series.

Our collective experience through these uncertain times has shown that we’re always stronger when we work together. With your help, we’ll continue to be there for everyone with a muscle-wasting condition. In 2021, we want to fund new research and to expand the potential – the hope of new treatments. But we can only do this with your support. Please join us.

Here’s how you can help:

1. DONATE by text, phone or online
2. FUNDRAISE for us from home
3. SHARE your stories, pictures and videos to inspire others to join in

Thank you,




Catherine Woodhead
Chief Executive

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