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In July 2021, we published the 'Shining a Light: the impact of COVID-19 and the future of care for…
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Spinraza
The first treatment for spinal muscular atrophy (SMA), Spinraza is now available to…
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To mark Becker awareness week, we were joined in our BMD seminar by researcher Federica Montanaro,…
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To mark LGMD awareness day, we were joined in our LGMD seminar by researchers Volker Straub and…
Blog
Led by Public Policy Projects and Genetic Alliance UK, the Rare Disease Coalition held four…
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To mark Mitochondrial Awareness Week 2021 (19-25 September), we were joined in our mitochondrial…
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We were joined in our education seminar by neuromuscular care advisor Sue Manning, SENCO Michael…
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To mark World Duchenne Awareness Day 2021 on Tuesday 7 September, we were joined in our Muscles…
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In the week of World Duchenne Awareness Day 2021 we are delighted to be able to announce that the…
Blog
I am pleased to announce that the Journal for Neuromuscular Disorders has accepted for publication…