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Led by Public Policy Projects and Genetic Alliance UK, the Rare Disease Coalition held four…
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Nathan said,
In our last conversation, I told him I would fundraise to support research into…
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Lis Watson met Simon Wright, a multi-talented songwriter and sportsman who has facioscapulohumeral…
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Watching how his father’s muscle-wasting condition caused his health to deteriorate has motivated…
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Carmela Chillery-Watson has won the Young Hero category at The Sun's Who Cares Wins awards in…
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That’s why we’re joining a global alliance on 15 September, International Myotonic Dystrophy…
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Joseph Moan has been blind from birth. When their eldest son Jack was diagnosed with Duchenne…
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Clive Mockett, aged 56 and from Nottinghamshire, lives with Mitochondrial Myopathy, a condition he…
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Sam Tisbury, from Brentwood, has a strong connection with MDUK through supporting his Uncle Bryon,…
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David Howard, who has facioscapulohumeral muscular dystrophy (FSHD), is excited to be taking on the…