George's Journey

Lilian and George Pegg set up George’s Journey in 2015, after their son was diagnosed with Duchenne muscular dystrophy. They started fundraising in the hope of treatments becoming available for Duchenne.

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From a very young age, George struggled with crawling and then only began walking from the age of two, while continuing to have difficulty with rising from the floor and climbing stairs. We took him for a physical assessment, after which he went under a muscle biopsy. At just three years old George was diagnosed with Duchenne muscular dystrophy.

We started our Family Fund in 2015 to raise vital funds for research into Duchenne treatment. We never imagined that 11 years later, we would have hit the £250,000 milestone. It just goes to show that even if you’re from a small seaside town like us, you can make so much change in the world when you have the support of family, friends and your community.

We’ve done a huge amount of fundraisers over the years to raise money for Muscular Dystrophy UK, including organising charity football events, fun runs, karaoke nights, taking on the world’s longest zip slide and sky dives!

Most of the money raised goes towards funding research into George’s condition, and when it comes to treatments, we’re still hopeful. George was one of the first children to go onto a Translarna trial when he was just five. A couple of years ago, he had to stop because of side effects, but I believe it helped him quite a bit when he was younger.

There are times when it feels quiet on the research front, and then suddenly there’s so much happening again. Even if future treatments don’t benefit George directly, I hold onto the hope that they’ll help the younger boys coming through, which is amazing.

You can follow George’s Journey on Facebook

Net proceeds from George’s Journey will be split 80% for research into Duchenne muscular dystrophy and 20% for the family’s welfare