Our fight for Ryan is a Family Fund set up by Claire and Cieran Chidzey for their son, Ryan, who has Duchenne muscular dystrophy.
Ryan is a bright, happy and intelligent boy with a love of paw patrol and superheroes. He is a typical young boy with a bubbly personality and boundless energy. On Tuesday 24 January 2017, the family received confirmation of Ryan’s diagnosis, a result that has shocked the whole family.
Hearing such devastating news is completely heart-breaking. You plan your child’s future with hopes and dreams then it all comes crashing down.
Immediately the family have set about to make a difference. Claire and Cieran are determined to make sure that Ryan grows up to fulfill his wishes and have launched Our fight for Ryan to raise awareness and vital funds for Muscular Dystrophy UK.
Our aim now is to raise as much money as possible to get it into the hands of the world’s leading scientists who have the best chance of making a cure a reality.
All of the funds raised will go towards the Duchenne Research Breakthrough Fund – funding world class research, boosting clinical trial capacity in the UK and supporting the important campaigning activity that will ensure Ryan and others in the UK have access to emerging treatments.
We all have so much love for Ryan, he’s our big boy and we can’t imagine our lives without him
The family have now raised more than £38,500 in just 18 months thanks to the generosity of family, friends and local residents. Their efforts have included coffee mornings, fun day events, a charity evening for Ryan, a coast to coast cycle challenge and two incredible black tie balls.
They have also established an annual family fun run through their village of Gainford. Run for Ryan has seen more than 100 participants Move a Mile for Muscles by taking part in the 5-mile or 2-mile distances to help raise funds for research.
How you can help