Skip to content
ALL NEWS
Filter by type
Treatment for myasthenia gravis not approved for NHS use in England
June 4, 2025
Read Treatment for myasthenia gravis not approved for NHS use in England
Volunteers’ Week – thanking our volunteers
June 2, 2025
Read Volunteers’ Week – thanking our volunteers
Development of Duchenne muscular dystrophy treatment PGN-EDO51 stopped
May 29, 2025
Read Development of Duchenne muscular dystrophy treatment PGN-EDO51 stopped
Givinostat access: progress made and the work still to do
May 23, 2025
Read Givinostat access: progress made and the work still to do
A potential treatment for Pompe disease shows future promise
May 21, 2025
Read A potential treatment for Pompe disease shows future promise
Sporting stars show support at Celebrity Sports Quiz
May 19, 2025
Read Sporting stars show support at Celebrity Sports Quiz
The latest research into muscle wasting conditions at the UK Neuromuscular Translational Research Conference
May 16, 2025
Read The latest research into muscle wasting conditions at the UK Neuromuscular Translational Research Conference
New partnership blooms with Blue Diamond Garden Centres
May 14, 2025
Read New partnership blooms with Blue Diamond Garden Centres
Thousands complete Bidwells Oxford 10k to raise £300,000
May 14, 2025
Read Thousands complete Bidwells Oxford 10k to raise £300,000
Givinostat – our role in supporting access to new treatments
May 2, 2025
Read Givinostat – our role in supporting access to new treatments
Building a legacy: Over £8 million raised by property sector fundraising event
May 2, 2025
Read Building a legacy: Over £8 million raised by property sector fundraising event
Our auction for London’s hottest ticket: You Me Bum Bum Train
April 16, 2025
Read Our auction for London’s hottest ticket: You Me Bum Bum Train

Stay connected with our community

Get the latest news, inspiring stories, upcoming events, and valuable support services delivered straight to your inbox.